Explore tweets about #EhlersDanlosSyndrome on Twitter
@CortDoesScience
Cortney Gensemer 🔬🧬
a day ago
With #GivingTuesday Tuesday rolling around, I wanted to share info on how to donate to #EhlersDanlosSyndrome research in the Norris Lab at MUSC. EDS is an inherited connective tissue disease that affects 1 in 500 people and lacks clinical and basic science research efforts
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@ehlersdanlosuk
Ehlers-Danlos Support UK
15 hours ago
The Ehlers-Danlos Support UK is committed to supporting people with symptom management – so they can live the best life they can. This #GivingTuesday please donate £15 or whatever you can and help us help more children like Jenny❤️ #EhlersDanlosSyndrome
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@Zebrafishspoony
Steel Zebras 🦓 ♿
17 hours ago
I'm not going to eat. My stomach is rumbling, and I'm ignoring the treacherous bar-steward. A lot of people are unaware that #EhlersDanlosSyndrome causes us so many more issues than just our joints- ✓pain ✓fatigue ✓subluxations ✓dislocations ✓GI issues ✓OA ✓TMJD ✓SIJD
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@DinkyKt
Katie Wearing
5 hours ago
This is the charity that I support (where a % of my merch goes to) and it’s close to my heart as I have Ehlers-Danlos Syndrome, the Classical type. Please give if you can. ♥️
@ehlersdanlosuk
Ehlers-Danlos Support UK
15 hours ago
The Ehlers-Danlos Support UK is committed to supporting people with symptom management – so they can live the best life they can. This #GivingTuesday please donate £15 or whatever you can and help us help more children like Jenny❤️ #EhlersDanlosSyndrome
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@DAkellot
Daniella Akellot
52 minutes ago
My life story with Ehlers Danlos Syndrome has been featured in the @DailyMonitor newspaper. Thank you @EstherOluka for writing such a beautiful article. #EDSAwareness @TheEDSociety @EhlersDanlosPro @EDS_Today @EDSawareness1 @ehlersdanlosuk
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@CortDoesScience
Cortney Gensemer 🔬🧬
a day ago
EDS is rarely recognized, diagnosed or taken seriously by clinicians despite the severity of symptoms patients face. It’s often said that no other disease has been ignored in modern medicine like #EhlersDanlosSyndrome - we are trying to change this.
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@Zebrafishspoony
Steel Zebras 🦓 ♿
a day ago
#EhlersDanlosSyndrome I ate a new food, guess what happened?
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@DeeliciousBeach
Luna Nightingale 🌻👻🎃
2 days ago
Swapping me strapping, bloody fingers hate the cold and still officially twice their size 🙄 but I have a fleecy and fracture clinic tomorrow to assess the damage #EhlersDanlosSyndrome is a dick #DislocatedOnABloodyDoorHandle 🤦🏽‍♀️
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@cynderheartt
Carli | COMMISSIONS OPEN
4 days ago
This will be a chain. I have EDS (Ehlers Danlos Syndrome). There are more times than I can count on this one.
@dominickevans
Dominick Evans
6 days ago
How many of you have had an experience with a doctor that has dismissed your concerns or ignored what was happening to you and your body medically?
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@burnham_simon
EDS-PILOT-SIMON
a day ago
So as you know when is comes to my #EhlersDanlosSyndrome I’m pretty positive because I had to be and I have achieved a lot being positive, I also have dyslexia and luckily was diagnosed when I was at primary school. But I don’t like people using their condition to be rude.
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@yyyetii
yyyetiii❄
2 days ago
💪❤SOS No job - workin on disability! ***no income at all for now*** I have PTSD, Ehlers Danlos Syndrome, CPTSD, ADHD, Treatment Resistant Depression, Social Anxiety Disorder, Brain Fog AND a deformed spine in at least 2 confirmed places. I black out / have seizures too rn 💪❤
@yyyetii
yyyetiii❄
2 days ago
@pandamoonxo And venmo is also yyyeti 💪❤
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@nerdyzebraPhD
Nerdy Zebra, PhD
a day ago
#hEDS paying out of pocket for more specialists and treatments because insurance just doesn’t get the complexity #EhlersDanlosSyndrome
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@burnham_simon
EDS-PILOT-SIMON
a day ago
I’m not one for letting my condition beat me never have never will but today I am completely Romeo done a day of doing sweet f all #EhlersDanlosSyndrome
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@faggotzoro
zoro liker | caught up on one peas
2 days ago
luffy in aus with no devil fruit powers having ehlers-danlos syndrome is top tier content actually
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@burnham_simon
EDS-PILOT-SIMON
a day ago
Still looking for people to do some of our Sunday routes for the @ehlersdanlosuk charity simulated 24 airports in 24 hours, you don’t need to have experience it’s all for fun. Ideally you must have EDS or a family member. #EhlersDanlosSyndrome
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@TheEDSociety
The Ehlers-Danlos Society
a day ago
We are delighted to be hosting a dedicated virtual conference focusing on #ClassicalEhlersDanlosSyndrome ( #cEDS), presenting the latest in research, clinical care, and management. #EhlersDanlosSyndrome #MedEd #MedTwitter
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@StephKall
Steph Kall She Her Hers
2 days ago
I had to go to the ER on Friday for migraines- another awesome symptoms related to #ehlersdanlossyndrome this bruising is from the IV 😩
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