My greatest wish - that established publishers and new start-ups realise that the biggest properties across all media are science fiction and fantasy, and give us more imprints, more editors and more, more, more of everything!
I dunno, friends. I've held back from saying something for too long probably, but it was painful to me to see some of you who I *really admire* jump all over disabled authors this year for promoting their own books. That's a crappy feeling. It sucked to watch.
Joining in on the
This year has been intensely traumatic for me on many levels. But to have an agent who *gets it*, especially concerning health & illness, and who fights for this kind of representation in books is ... a big deal. And so rare.
going around, so it's time to share my gratitude and appreciation for my amazing agent,
. Jen is the fiercest advocate and I'm so happy to have her championing my stories and believing in me, even when I'm struggling to believe in myself. ❤❤❤
One aspect of chronic illness that people don't see is compromise. You're constantly trying to figure out what kind of life you can lead, that will bring you joy without making you feel too sick. That's really hard to do and it comes with a lot of grief, frustration and sadness.
TW - miscarriage.
For many, today is hard for a multitude of reasons, one being that some of us are missing the little ones we never got a chance to meet - and facing the trauma of that loss. To those feeling weary, heartbroken, and disjointed today for any reason, I see you 💛
Additionally, I've had a doctor nearly kill me using anti-choice legislation. I've briefly talked about this, but never dropped the full story. I need people to understand the panic I'm feeling about this. 🧵incoming.
tw for pregnancy, miscarriage, fertility issues
Pregnancy can be hard for someone who has kidney disease. I want to be able to choose what I do with my disabled body when I please. It’s more than just a personal choice, it can be life or death.
Chronic illness takes many forms. Britt is brave to write so candidly. Please don’t be fooled by the often invisible nature & inconsistency of these illnesses. Just because we look fine & able one day doesn’t mean we’re always fine & able or faking it on the hard days. 💙💙💙
This is well worth a read, especially if you aren't familiar with Lyme Disease and how much it can impact every aspect of someone's life.
Chronic illness is more than inconvenient, and it is often invisible. But it isn't, not really. Not if you're paying attention.
One last thing. Most of the time, it feels like only other chronically ill & disabled people care. Otherwise, we're brushed off, or worse, we aren't believed. It would be nice, so nice, if that were to change.
Oh! And this doesn't even begin to cover the anxiety and medical PTSD I've lived through. That's a story for another time, but let's just say this: even now, even having written this post, my hands are numb. I lose feeling in my limbs when I'm nervous for *any* reason.
I'm going to end it with this, though. This disease is horrible. We need awareness. But, because I simply *must* find the positives, it's forced me to slow down and treasure those around me. I never would have picked up a book, let alone write had I not simply *stopped*