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IFSBH

@ifsbh

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The International Federation for Spina Bifida and Hydrocephalus (IF) is the worldwide umbrella organisation for Spina Bifida and Hydrocephalus associations

Brussels, Belgium
Joined December 2009
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@ifsbh
IFSBH
11 days ago
📣Call for abstracts: IF is still welcoming abstracts for our Multidisciplinary Care Conference that will be held in September from 14th - 17th, for more information visit our webpage: https://t.co/Ia4fGfH9Dn #MDC #MultidisciplinaryCare #SBH #SpinaBifida #Hydrocephalus #IFSBH
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@ifsbh
IFSBH
2 days ago
IF still welcomes abstracts for its Multidisciplinary Care Conference! Deadline: 4th of June 2021. Check the abstract guideline out: https://t.co/ZzmIW7sAIX #multidisciplinarycare #SpinaBifida #Hydrocephalus #SBH #health #abstract https://t.co/Po9AcF7bPv
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@ifsbh
IFSBH
4 days ago
The survey is now available in English, Danish, German, Spanish, Hungarian, Dutch, Polish, Portuguese!
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@ifsbh
IFSBH
4 days ago
Are you a #parent or #carer of a #child aged 0-10yrs who has #SpinaBifida? Researchers @StGeorgesUni would like to hear your views about your experience of info & support for your child. To take part in this study or for more info, please visit: https://t.co/rVrj0ZuO4K 🔁PleaseRT https://t.co/AbehGN8y7y
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IFSBH Retweeted
@MyEDF
EU Disability Forum
5 days ago
🗓️Today, at 2pm we will discuss the role and functioning of the UN Optional Protocols as tools to defend the rights of women and girls with disabilities. 💻Join us in this online workshop organised jointly with @IDA_CRPD_Forum 👇Registration still open! https://t.co/Sa4jRY4cnq
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IFSBH Retweeted
@eupatientsforum
European Patients' Forum
9 days ago
Register now for the 10 May @EU_Commission event: Mental health and the pandemic: living, caring, acting! The event, hosted by Health Commissioner @SKyriakidesEU , will provide a better understanding of the mental health impact of COVID-19. More info ➡️https://t.co/VPCfHbjOZR https://t.co/M2LOPiJfCO
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@ifsbh
IFSBH
8 days ago
Let’s commit to diversity in May 2021! During🇪🇺#EUDiversityMonth we will: √ make our efforts for more diversity visible, √ promote diversity & inclusion in our workplaces & in society, √ stand for diversity & act for change! Join us👉https://t.co/kjJOaTJd3C #UnitedInDiversity https://t.co/oOhbmb3mvb
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IFSBH Retweeted
@EU_Commission
European Commission 🇪🇺
11 days ago
Diversity is a strength. When we embrace it, we can all benefit from it. This May we celebrate #EUDiversityMonth to fight discrimination and promote inclusive workplaces. Join us and find out how diversity can benefit your organisation or business. ↓
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@ifsbh
IFSBH
9 days ago
Read how Helena, 23-weeks pregnant, travelled to a specialist hospital in Belgium,- which works in partnership with the NHS-, and how the operation to repair her baby's exposed spinal cord and close the hole in her back went: BBC News: https://t.co/63Bph7HCrV #SBH #SpinaBifida
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IFSBH Retweeted
@helenadalli
Helena Dalli
12 days ago
13 years ago today, the @UN Convention on the Rights of Persons with Disabilities entered into force - a breakthrough. The #EUDisabilityRights Strategy sets out various measures with the aim of implementing the #UNCRPD by 2030. No one will be left behind in our #UnionOfEquality https://t.co/sRYufgoKEc
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@ifsbh
IFSBH
11 days ago
During the #EUDiversityMonth, the European Union celebrates organisations’ efforts in promoting #diversity in the #workplace and in creating inclusive working environments. #inclusion #EU https://t.co/MuKY5EiAqp
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@ifsbh
IFSBH
11 days ago
In May, IF along other partners will celebrate the European Diversity Month aimed at raising awareness on the importance of diversity and inclusion in society. Participate to the live-streamed launch event with the Commissioner for Equality, @helenadalli: https://t.co/R3uYFbzoRT
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@ifsbh
IFSBH
11 days ago
Join the "Active Rehabilitation of Children and Persons with Disabilities "from the series" Spina Bifida - Hydrocephalus: Fundamentals of Interdisciplinary Care" will be the topic. The webinar is at 7pm (Ukraine time zone) on May 5th. Link to participate in next thread! ⤵️ +
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@ifsbh
IFSBH
11 days ago
Join the Multidisciplinary Care webinars organised every wednesdays by our member in Ukraine, Parents Association for Spina Bifida and Hydrocephalus 'Lights of Spirit'! Read more in threads ⤵️ +
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@ifsbh
IFSBH
11 days ago
A good understanding of political institutions are essential for effective #advocacy. Find below IF's Information package on the European Union where IF outlines the core #institution of the #EU and how they relate to #disability #rights in the EU: https://t.co/skjHbmByz0
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@ifsbh
IFSBH
11 days ago
You did not have the opportunity to participate to IF's training on Connecting with policy makers and using social media for SBH advocacy on the April 24th, but you would like to know more about it because you are advocating or willing to advocate for SBH? ++ #SBH #advocacy https://t.co/zcTEiAZkxx
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@ifsbh
IFSBH
12 days ago
📣 IF's May 2021 Newsletter is out ! Read it now: https://t.co/ImU2hGn5Xf. Don't forget to subscribe to IF's newsletter so you don't miss further ones! #IFBSH #SBH
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@ifsbh
IFSBH
12 days ago
[NEW LINK]IF's Multidisciplinary Care (#MDC) report which provides individuals with #SpinaBifida & #Hydrocephalus in #Europe an explorative study underlining the need for multidisciplinary care for individuals with #SBH & their families is available here: https://t.co/TcxLCVLahJ https://t.co/4pzKhtRwA7
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